Saturday, October 25, 2008

What on earth?!


I come home from work yesterday and what do i find in the back yard?

Funny thing is - we don't have horses.

The story is this - some neighbor's horses escaped from a nearby pasture, and looking for food,  thought they'd take up residence on our newly-mown lawn.

They eventually moved on.


Thursday, October 23, 2008

Round 6, Complete

So round 6 is over, and my chemo is officially concluding. I was dismissed from the hospital on Wed morning, and hope to be free from having to go back to Martha Jefferson for a good stretch. I won't hear more about the prognosis for another month or so - that's when the next PET scan will be. I'm supposed to have a doctor's appointment next Friday, which will give me a better idea about what my next steps will be.

I'm still in the process of getting through the recovery from round 6, and have the typical headache, aches, pains, etc, as before. But it feels good to be done.  Coming out of the hospital, the seasons have changed, and now it's fall. It's strange - but I've missed summer, and don't have much recollection of it. But we have a fire in the fireplace, and that's comforting. I'll write more as it comes to  me.

Sunday, October 19, 2008

The Orange Bag (aka, the Red Devil)

I don't remember whether I've posted pictures of theis before, but here is the orange beast I've had pumped into my veins from day one. One of the components that gives this stuff its color is called Doxorubicin - which the docs and nurses affectionately call the 'red devil'.  I'm getting plenty of ofther stuff as well, but none of it is so interesting as would be worth taking a picture. But these are about to fall by the wayside as this round ends - so I thought I'd give credit to these miracles of modern science where they're due.

Funny thing about this stuff is that it's safe  (or at least effective against the lymphoma) when pumped into my vein. However, it's supposedly pretty problematic when it gets onto the skin. So my nurses dress up in multiple layers of glooves, aprons, and face shields. 

It's Sunday, and the headache has returned in force. I'm keeping it at bay with the available meds, and am watching the television to pass the time. I've had lots of visitors this weekend, so that's really kept my spirits up.

Tomorrow, I hope to get some work done, in preparation for getting back into the swing of real life. I'm looking forward to getting back to that. 

Thanks again for your prayers, support, and friendship!

Friday, October 17, 2008

The sixth (and final?) round

I'm excited. The first day of the final round has nearly ended. It's been a little rough today on me today - mainly because I'm still beat from the previous round, but all in all, today's session was typical . 

At 9 am I got my intrathecal chemo (spinal tap with methotrexate). At 1 pm, I was on the Rituxan. By three the splitting headache had come, but I was able to stave it off by asking for pain relief. I'm trying to stay on top of it by being more proactive in asking for help. So far it seems to be working.  
At 5 we started the EPOCH cocktail (I've just got to include a picture of the bright orange bag).  Now just 4 days on the bag of orange goo...

For dinner, my lovely wife brought me a tasty sub, and we chatted while watching the evening news. She's really been wonderful putting up with these trips, and my sickness, and all of the extra work with the girls. I could not imagine anyone could have so much patience with this patient. She's a saint.

At any rate, I'm now snacking on malted milk balls and getting ready to watch Iron Man - which I've been assured is a great movie.

Oh - on Wed, someone at work asked about the mushrooms. Jane mixed the shiitake (the only log to fruit) into an omelet on Wed night. Delicious! Jane is an incredible cook.
Thanks again to all for your kind words, thoughts, and prayers.. I'll write more as more happens.

Monday, October 13, 2008

A Quick Post

Not too much news from the weekend. On the positive side, all of my numbers were up on Friday, after being at an all time low. I was severely neutropenic (i.e., had no white blood cells) this time last week, but recovered pretty fully by Friday.

This weekend we spent time with the girls, enjoyed the marvelous weather, and I took a long walk on Sunday. This morning, I awoke with a bit of a cold. I'm hoping it will resolve by the time I hit the hospital on Friday. In the meanwhile, plenty of fluids for me, and maybe some advil.

The shiitake mushroom log finally bore some fruit. I took pictures this weekend. I'm a little disappointed that none of the other logs were productive. Maybe next Spring - who knows.

I think I'll rest up tonight - maybe I'll watch a movie...


Sunday, October 5, 2008

Free Weekend

We had this weekend free - no hospitals, no appointments, no guests - and so we decided to take it easy.  We didn't go anywhere, or do anything - which made for a nice change.

Yesterday, Jane worked in the garden, getting it ready for the winter, and planting some fall crops. Our neighbor kindly came over and helped with some mulching using her big industrial chipper. I watched the girls and nursed this headache from the last intrathecal. I'm sure I sound like a broken record, but I've never managed to get the pain from these things under control. I've tried the patch, painkillers, everything, and it's all for naught. Horizontal rest and continual consumption of coffee and Diet Coke is my current best bet to treat the problem. Unfortunately, it'a a little like putting a band-aid on a gunshot wound. Well, with any luck, I'll only have one more round of it that I have to deal with.

At any rate, when I was feeling a bit better on Saturday afternoon I tended to the mushroom logs, soaking them in water in the hopes that they would finally start to bear some  fruit. We'll see in a couple of days. I'm hopeful for some success, as we've had no fruitings this year. Last year, we had so many flushes, we had to start drying them. I'm not sure why we've had less luck this year.  Bad weather, bad spawn, who knows?

We received a care package from some of the families at our church on Saturday. That was really great, and I continue to be amazed by how helpful and kind people have been. I feel a little helpless to do anything but say 'thanks', when everyone has been so kind to us, both through their gifts and thoughts and prayers.

Today we went to mass, and after that came home and had brunch. Jane made omelets. We then decided to surprise the girls, and took them out to the Margaret's elementary school to practice bike riding. They're both doing very well at it. Both have the same issue of forgetting to pedal, though. This makes for a very stop and go practice session. I'm sure that we'll only need a little more practice, and they'll be merrily riding along. I promised Margaret I'd go running with her while she rides the bike - when she gets the hang of it.

After that, a little chestnut picking at a nearby church, and the day was over. How the time flies. I wonder what we're going to do with all of these chestnuts.
























A couple of you have asked about the Oatmeal Stout. I can't really say how it's progressing - as my tastebuds are wrecked right now - thanks to Mr. Chemo. Jane swears that it tastes pretty good. I'll give it another week or so before I make any assessment. It's easy to be partial to one's own recipe.  My gut tells me that it's probably going to be an ok beer. I'm already working up a recipe for my next batch. I'm thinking an English ESB...

Wednesday, October 1, 2008

Another one down

Well, I'm happy to say that that I've managed to make it through round 5, which will - hopefully -  be my next-to-last long stay in the hospital.  Apart from the discomfort brought on by the spinal taps, this time was a little easier than the previous visit. I guess that there is a solace in routine even for unpleasant activities. Hopefully, next time will be a breeze :) 

At any rate, there's little new to report, except for that I'm tired, and the chemo has hit my taste buds, so nothing tastes right.  Last night was a bear. This headache, which i thought I'd taken care of, has resurfaced, but I've been given some meds to take care of that - and hopefully, they'll work. We'll see. And, for the record, one of the worst of the chemo meds I've run into are the steroids. I just thought I should put that down as one of my all-time least favorite medicines. Prednisone is my current least favorite, as I've found it keeps me from keeping things in perspective.

On the plus side, I did meet with one of the other docs from the HOPE clinic (that's my oncology group) and he had some encouraging words. Nothing earth shattering or new, but his presentation was good. He put some of my concerns into a perspective I hadn't otherwise been able to frame them in.  It cheered me up.

Well, I'm a little tired here tonight and will be turning in in a bit. Thanks again for all of the happy birthday wishes, and friendship, and calls and visits.